… for now. My diagnosis was updated a few years ago to Friedreich’s Ataxia. A different name, slightly different symptoms, but everything else is basically the same. It’s not even confirmed: that requires a genetic test costing approximately what I make in a year and not covered at all by any insurance.
Not that it matters. My life is a Choose Your Own Adventure story with one ending. Come to think of it, so is everyone’s. Mine’s just half as long.
My current goal is to get my Ph.D. before I need a wheelchair. It’s going to be close.